For some, they also experience difficulties with their throat causing them to lose their voice, like Jennifer Durant, who hasn’t let ALS stop her from her calling as an Episcopal priest.
“It’s really difficult and extremely rewarding,” said Jennifer through her computer generated voice response.
Jennifer is only able to speak through a computer that types up words from a dot on her forehead, by which it then speaks on her behalf.
Her husband Matthew, whose done the ice bucket challenge, says the journey with his wife is something he wouldn’t trade for anything, which he says is a compliment to her as a person and as a priest.
“It’s been an amazing journey filled with every emotion imaginable,” he said