Health care: if you can't save everyone, who do you save?

By Marshall Scott

It will surprise no one that I pay attention to news about health care. And these days there is certainly enough news to pay attention to. There’s the ongoing work in Washington that we hope will result in universal access to health care for all in America (and I say “we” deliberately in that the General Convention has called for universal access for a generation and more). There have been two reports, one on breast cancer and one on uterine cancer, each suggesting that screenings commonly accepted for some time aren’t as helpful as we thought. Finally, all of these have led to discussions of what we might and might not be able to offer and include in health care for all.

The conversations on all these topics have been heated. That’s because, I think, the topics have been in one way or another about limitation, and sometimes explicitly about how limitation might apply to each of us personally. We’re not comfortable talking about limitations, really; but we get even more disturbed, and even frightened, when we realize we might have to face limitations ourselves.

For me, though, this has focused my attention on a very personal question: what is my life worth? Actually, for me the question has been less abstract and more comparative: why is my life worth more than someone else’s?

In a way, that’s a difficult question to face. That’s because the applications of such a question are very specific. They’re also very critical.

Let me give some examples. According to current statistics there are more than 100,000 persons who might benefit from donation of an organ. However, in all of 2008 less than 28,000 organs were transplanted. That’s not the number of donors; it’s the number of organs. The number of persons who die who become donors are perhaps 6,000. Now, if my heart or my liver begins to fail, I might indeed benefit from a transplant, but I would be only one of thousands. If I accept a donor organ, I can be sure another person will die. So, why is my life worth more than someone else’s?

We don’t have to choose an issue as blunt as organ transplant. Consider the announcement from the U. S. Preventive Services Task Force changing the recommendations regarding screening for breast cancer. One way of understanding the findings of the Task Force is to consider that 1,904 women between the ages of 39 and 49 would need to be invited for screening to have one breast cancer death prevented. Many women, and many physicians, have been very critical. They worry that, based on the recommendation, insurance companies will deny payment for screenings for women younger than 50, whether for those with circumstances that might indicate an exception or for those who simply want the screening. They point to women who have benefited from mammograms, and ask why 1903 unnecessary mammograms aren’t worth the saving of the 1904th – especially when we can’t really know which woman in the 1904 is the one who will actually benefit.

However, that sounds like a choice between spending resources for mammograms or not. That’s not really the situation. How we use resources (including but not limited to money) is important because they’re limited, and as I said above, resources used in one place aren’t available for another. So, where might we use these resources? According to the CDC in 2005 more than 40,000 women died of breast cancer. However, in the same year almost 330,000 women – eight times as many – died of heart disease. So, if we committed the same resources of those 1900 plus mammograms to heart disease screening instead? Would we save eight women instead of one? Why is the one woman’s life more important than the eight women’s?

We have known for some time that achieving universal access to health care is really a matter of political will. We can do it, but we can’t do everything. I remember from my youth that wonderful poster, “What if we had all the money we needed for schools and the military had to have a bake sale to buy a bomber?” So, perhaps one thing that gets us closer to universal access is cancellation of the F-22 fighter program.

The same thing is true within health care. Just how great our resources for care will be is largely a matter of political will (and no, I don’t think the market will be more effective in meeting our needs in the future than it has been in the past), but they will certainly not be infinite. We will be able to do much, but we won’t be able to do anything. We can give that a negative focus and speak of “rationing,” or we can give it a positive focus and speak of “comparative effectiveness;” but we won’t be able to do everything, and we will have to set priorities.

And as we participate in setting those priorities, I think this is a relevant if difficult question: “Why is my life more important than someone else’s?” I think it’s especially apt for Christians. We are the community of him who laid down his life for us. We remember in light of his sacrifice that he said, “There is no greater love than to lay down one’s life for one’s friends.” So, this question is particularly important for us.

Now, I don’t want to claim any particular nobility here. This question may be easy or hard to ask in the abstract, but I have no illusion that it has to be hard to ask in the particular. If the person at the center of the discussion were my wife or one of my children, I don’t know that I could maintain a sense of altruism.

Still, it seems to me the critical question. Whatever our hopes for health care reform, we know we won’t be able to do everything for every person, any more than we are able to now. Within those limitations we are required to set priorities, and in those priorities there will be some who won’t get what they want, or will only get it at great difficulty and expense. We can hold those decisions at arms length, and let politicians and policy makers take the heat and the blame. Or, we can consider what we would forego as individuals, and call on those politicians and policy makers to use wisely the resources we decline. As a people gathered around one who let go of his life that we might have ours, we have a special responsibility for this very question. Why is my life more important than anyone else’s? And, how will I act on the answer I discern?

The Rev. Marshall Scott is a chaplain in the Saint Luke’s Health System, a ministry of the Diocese of West Missouri. A past president of the Assembly of Episcopal Healthcare Chaplains, and an associate of the Order of the Holy Cross, he keeps the blog Episcopal Chaplain at the Bedside.

Comments (3)

It takes a brave person to raise this question, Marshall. Hard-right conservatives have used the fear you mention to try and kill healthcare reform--but, from my POV, those of us on the progressive end of the spectrum have a responsibility to deal with the issue you raise.

I don't know the answer for anyone else, but I know where my personal lines in the sand are. They involve setting limits on treatments for illnesses with low cure rates (palliative only) and any serious treatment or surgery after a certain age. My end-of-life directives are quite clear on all of this.

There is another big question that those of us who are Christian have to answer: Why are we so afraid of dying?

I have seen studies suggesting that those who profess the strongest Christian faith (in terms of belief, church attendance, prayer frequency, etc.) are also the most likely to pursue extreme treatment--and by that I mean treatment that has a very low probability of success and that is painful or debilitating in the bargain.

Why is that?

Paige Baker

Paige, yours is a critical question. I have reflected on that study and articles from it, and you might be interested in that.

In some sense, it doesn't seem to be about fear but about faith - specifically, the expectation that God will intervene here and now in response to prayer. Patients and families who trust that God can, and can be expected to intervene in individual cases, who believe that the miracle will come, want to give more time and opportunity for the miracle to happen. There's a flaw in the logic: if God is intent on intervening, why wait for this or that additional intervention? But, as I say often enough, moral decisions are made emotionally and justified rationally after the fact.

As for why we're afraid of dying: as a chaplain, my experience in that is interesting. I don't find too many patients who are afraid of being dead, even if they believe profoundly in a judging God (although I still find a number of family members who are afraid of that judging God on behalf of the patient). However, I find many people who are afraid of dying, afraid of the process in some sense. For many it's fear of pain or discomfort in the process. For others, it's fear of grief - of their own grief at leaving loved ones, and of the grief that their death will bring to others. But I don't find that many who are actually afraid of being dead, or of what they might face after.

Marshall Scott

Marshall--that was fascinating! Thanks for the link.

Back in 2005, my parish had a 3-year grant from the Metanexus Foundation to do a Faith and Science Dialogue. Harold Koenig came and spoke as part of that series, and I suspect that I was (mis)remembering some of what he said.

Paige Baker

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